Approfondimenti bibliografici

Se vuole approfondire l’argomento può leggere questi articoli:

Barrere, C. C., Durkin, A., & LaCoursiere, S. (2007). The influence of end-of-life education on attitudes of nursing students. American Journal of Hospice and Palliative Care, 24(3), 202–210.

Caprio AJ, Hanson LC, Munn JC, et al. Pain, dyspnea, and the quality of dying in long-term care. J Am Geriatr Soc 2008; 56: 683–688.

Curtis JR, Patrick DL, Engelberg RA, Norris K, Asp C, Byock I. A measure of the quality of dying and death: initial validation using after-death interviews with family members. J Pain Symptom Manage 2002; 24: 17–30. 

Curtis JR, Treece PD, Nielsen EL, et al. Integrating palliative and critical care: evaluation of a quality improvement intervention. Am J Respir Crit Care Med 2008; 178: 269–275.

Della Penna R, Asking the right question J Palliat Med. 2001 Summer;4(2):245-8.

Donovan KA, Grassi L, McGinty HL, Jacobsen PB. Validation of the distress thermometer worldwide: state of the science. Psychooncology. 2014 Mar;23(3):241-50. doi: 10.1002/pon.3430. Epub 2013 Nov 11. Review.

Downey L, Curtis JR, Lafferty WE, Herting JR, Engelberg RA. The Quality of Dying and Death Questionnaire (QODD): empirical domains and theoretical perspectives. J Pain Symptom Manage. 2010 Jan;39(1):9-22. doi:10.1016/j.jpainsymman.2009.05.012. Epub 2009 Sep 25.

Fujinami R, Sun V, Zachariah F, Uman G, Grant M, Ferrell B. Family caregivers' distress levels related to quality of life, burden, and preparedness. Psychooncology. 2015 Jan;24(1):54-62. doi: 10.1002/pon.3562.

Glavan BJ, Engelberg RA, Downey L, Curtis JR. Using the medical record to evaluate the quality of end-of-life care in the intensive care unit. Crit Care Med 2008; 36:1138–1146.

Grassi L, Sabato S, Rossi E, Marmai L, Biancosino B. Affective syndromes and their screening in cancer patients with early and stable disease: Italian ICD-10 data and performance of the Distress Thermometer from the Southern European Psycho-Oncology Study (SEPOS). J Affect Disord. 2009 Apr;114(1-3):193-9. doi:10.1016/j.jad.2008.07.016.

Hales S, Zimmermann C, Rodin G. Review: the quality of dying and death: a systematic review of measures. Palliat Med. 2010 Mar;24(2):127-44. doi:10.1177/0269216309351783.

Hodde NM, Engelberg RA, Treece PD, Steinberg KP, Curtis JR. Factors associated with nurse assessment of the quality of dying and death in the intensive care unit. Crit Care Med 2004; 32: 1648–1653.

Levy CR, Ely W, Payne K, Engelberg RA, Patrick DL, Curtis JR. Quality of dying and death in two medical ICUs. Chest 2005; 127: 1775–1783.

Mastroianni C, Piredda M, Taboga C, Mirabella F, Marfoli E, Casale G, Matarese M, Frommelt KH, De Marinis MG. Frommelt Attitudes Toward Care of the Dying Scale Form B: psychometric testing of the Italian version for students. Omega (Westport). 2015;70(3):227-50.

Mularski RA, Heine CE, Osborne ML, Ganzini L, Curtis JR. Quality of dying in the ICU. Chest 2005; 128: 280–287.

Mularski R, Curtis JR, Osborne M, Engelberg RA, Ganzini L. Agreement among family members in their assessment of the quality of dying and death. J Pain Symptom Manage 2004; 28: 306–315.

Munn JC, Zimmerman S, Hanson LC, et al. Measuring the quality of dying in long-term care. J Am Geriatr Soc 2007; 55: 1371–1379.

National Comprehensive Cancer Network. NCCN clinical practice guidelines in oncology: distress management. J Natl Compr Canc Netw 2013;11:190–208.

Patrick DL, Curtis JR, Engelberg RA, Nielsen E, McCown E. Measuring and improving the quality of dying and death. Ann Int Med 2003; 139: 410–411.

Patrick DL, Engelberg RA, Curtis JR. Evaluating the quality of dying and death. J Pain Symptom Manage. 2001 Sep;22(3):717-726.

Stewart AL, Teno J, Patrick DL, Lynn J.J. The concept of quality of life of dying persons in the context of health care. Pain Symptom Manage. 1999 Feb;17(2):93-108.

Treece PD, Engelberg RA, Crowley L, et al. Evaluation of a standardized order form for the withdrawal of life support in the intensive care unit. Crit Care Med 2004; 32: 1141–1148.